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The Validity and Reliability of Characterizing Epilepsy Based on an External Review of Medical Records
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Bong Su Kang, Hae-Kwan Cheong, Ki-Young Jung, Sang Hyeon Jang, Jae Kook Yoo, Dong Wook Kim, Soo-Eun Chung, Seo-Young Lee
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Epidemiol Health. 2013;35:e2013006. Published online August 23, 2013
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DOI: https://doi.org/10.4178/epih/e2013006
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Abstract
<sec><title>OBJECTIVES</title><p>Our goal is to validate diagnosing and characterizing epilepsy based on a medical record survey by external reviewers.</p></sec><sec><title>METHODS</title><p>We reviewed medical records from 80 patients who received antiepileptic drugs in 2009 at two hospitals. The study consisted of two steps; data abstraction by certified health record administrators and then verification by the investigators. The gold standard was the results of the survey performed by the epileptologists from their own hospital.</p></sec><sec><title>RESULTS</title><p>The specificity was more than 90.0% for diagnosis and activity, and for new-onset seizures. The sensitivity was 97.0% or more for diagnosis and activity and 66.7-75.0% for new-onset epilepsy. This method accurately classified epileptic syndromes in 90.2-92.9% of patients, causes in 85.4-92.7%, and age of onset in 78.0-81.0%. Kappa statistics for inter-rater reliability and test-retest reliability ranged from 0.641-0.975, which means substantial to near-perfect agreement in all items.</p></sec><sec><title>CONCLUSIONS</title><p>Our data suggest that epilepsy can be well identified by external review of medical records. This method may be useful as a basis for large-scale epidemiological research.</p></sec>
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